Comments for "DEAR LEADER"

Comment on Piriformis Syndrome. by Alisa

Alisa — Tue, 26 Mar 2013 21:31:14 +0000

I stumbled upon this thread while actively searching “how can I tear my piriformis so that they will fix it?” I’ve tried it all except the Botox and am now wanting to intentionally tear this muscle up in hopes of having it surgically repaired. This is awful.

Comment on Piriformis Syndrome. by Julie Brough

Julie Brough — Sat, 02 Mar 2013 19:21:53 +0000

I am a 68 year old woman who has always been quite active. There came a time about 33 years ago when it felt like I had been kicked in the butt by a mule, with a constant burning, varying pain, and constant aching. Whenever I exercise or walk, it bumps up the pain intensity and I have to stop. The only thing that helps is frozen peas – really, it helps, but of course only temporarilly. I have done every stretch in the books, PT, back injections , but nothing has ever helped. No anti-inflamatory, OTC pill or pain medication makes any difference! When I ask my Dr.s if it is piriformis syndrome, they pretend like they don’t hear me. All these years I thought it was sciatica until realising that the pain never went down my leg – just stayed in my one buttock, and tighening up my IT band, making hiking, going up stairs and sitting almost impossible. Now that I have read here about the Botox injection, I’m going to pursue that, and will let you all know if it works. My pain Dr. has never suggested it, so if he won’t do it, well, on to the other pain Dr. in town. Thanks for everyone’s input here, as it does help to know my brain isn’t just making this up, or trying to punish me for some unknown sin in my past. Wish me luck…

Comment on Piriformis Syndrome. by Deborah

Deborah — Fri, 08 Feb 2013 15:08:23 +0000

I’he had piriformis problems since 2006 which started when I started running. After going to 3 chiros and 2 physical therapists I decided to go to an orthodox and be very proactive to nip it in the bud. Running kills me. Housework kills me. It sucks! Tried a numbing injection in my SI joint. Hat helped so she cauterized those nerves. Then the pain came back. Got an MRI that shows mild stenosis and one doc doesnt think it js bad enough to be causing the pain.Did a nerve block there. The pain came back. Disinterested neuro doc said do physical therapy 3 times a week for 12 weeks. Thanks for nothing. Did numbing and steroids injection in my piriformis 3 days ago and feel like it’s made the pain worse. Thought about botox but heard that only lasts a couple of months,and it’s really just masking it anyway. I really want to have he surgery to cut the muscle but after this numbing injection didn’t work I’m afraid it is not really my piriformis. So frustrated and feel out of options. And money. And time off for all these different injections!

Comment on Piriformis Syndrome. by Samuel

Samuel — Wed, 30 Jan 2013 01:10:21 +0000

I have been suffering from sciatica for 24 months now and had a lumbar discectomy 7 months ago, the surgery which has fixed a herniated disc has not stopped the constant unrelenting pain in my butt, hamstring, calf and foot. I am at the end of my tether with the medical profession all of whom don’t seem to want to treat me but instead insist on “getting my pain management” under control – aaarrrggh!!!

I have been popping, co-codamal, naproxen, gabepentin and diazepam like M & M’s for so long I can’t remember what it feels like to be normal.

I have reached the conclusion my piriformis is the problem as it is sore to touch, spasms at night and will ease off when walking but if I walk too long gets tired and spasms again. I massage it everyday using a tennis ball, use heat and ice but nothing seems to cure it?? I know I need to build my glute up (muscle wastage due to the herniation) but when I try this my piriformis acts up!!!

I am running out of patience and ideas and my physio therapist and doctors just tell me to stretch and take drugs – so frustrating!!

It’s good to vent some frustration and read people’s stories, knowing that some of you have got better is a welcome positive.

Comment on Piriformis Syndrome. by Barbara

Barbara — Mon, 14 Jan 2013 00:26:05 +0000

Grateful to have found this site. Almost two years ago I had a horrid fall, stress fracture of pelvis, hamstring avulsions, cracked femoral head and a torn hip labrum. As I have treated each part of the injury, I have been unable to rid myself of horrid chronic pain in the groin, butt and leg. It has a name,

Comment on Piriformis Syndrome. by Ros

Ros — Mon, 31 Dec 2012 15:32:01 +0000

I have just returned from hospital this morning after my 3rd injection for this awful ailment….this was a botox injection and I.m so hopeing that it works . Not meaning to sound like i wish pain on anyone but I’m so glad to have found this article as I know now I’m not alone…….and its not a figment of my imagination either….wishing you all a pain free 2013 Happy New Year

Comment on ?i?n Biên Phoutre…. by Scott Lightner

Scott Lightner — Sat, 17 Nov 2012 19:22:10 +0000

Ok, so almost a year later….

What’s the story on the girl siting on the scooter?

Comment on A Pearl’s necklace, Part trois: Or how P+G swam up river…. by Scott Lightner

Scott Lightner — Sat, 17 Nov 2012 19:19:36 +0000

Nice!
Reminds me of and “Adbusters” cover from around 2000 :

http://www.long-sunday.net/long_sunday/adbusters-1.jpg

Comment on A Pearl’s necklace, Part trois: Or how P+G swam up river…. by Darrell Eager

Darrell Eager — Wed, 03 Oct 2012 05:57:26 +0000

Great!

Comment on Piriformis Syndrome. by Midwestern Gal

Midwestern Gal — Mon, 27 Aug 2012 23:56:43 +0000

I have had Piriformis Syndrome for 18 awful months and have experienced all that everyone here has posted. I also have a 25 plus history of back problems including 2 surgeries. I bought the John Sarno book as advised. It works. EVERYONE who is having these issues or any such related issue needs to read this book. Also highly recommended is Howard Schubiner’s “Unlearn Your Pain”. IT WORKS. IT WORKS. IT WORKS. I have my life back again!

Comment on Piriformis Syndrome. by Will

Will — Sun, 26 Aug 2012 14:32:14 +0000

Okay it’s Will again -I’ve been posting here since 2009. I had tried everything under the sun (botox in butt, nerve root injections, ART, chiro, dry needling, prolotherapy, physiotherapy, etc) and I’m fairly convinced that a proper massage therapist was the answer. Not one that doesn’t know what they’re doing or that causes a lot of pain during massage. Mine has 2 science degrees. If you happen to get rid of the pain with massage there are still likely postural and other issues to address (I sit a lot for work).

I haven’t had the butt pain since I posted in March 2010. When I had the pain, I had brutal spasms during the night, could barely walk or put on my pants. One time when I was trying to walk to work and old ladies were passing me on the sidewalk, I started rubbing my upper glute (gluteus medius perhaps) on the left side. After 5-10 minutes something released and I was able to walk perfectly fine. That might have been a little clue of something like trigger points. I would have trouble getting up from sitting from after 10 minutes of walking I would start to loosen up again.

Comment on Piriformis Syndrome. by Diana Vanyo

Diana Vanyo — Thu, 16 Aug 2012 08:12:18 +0000

Piriformis Syndrome – you guys have said it all. The most horrific pain there is and one of those “rare” things most doctors never see. I am 60 yr old female in car accident 1997, a passenger in front right seat and took all the impact. On/off different drugs for 15 yrs looking for relief and all the while being told I was an addict just looking for drugs. Now add to this a husband who felt sorry for himself (he was driving the car-too fast,too close) and who stole all my money after his affair and who is also a stage 3 abuser who rages and has threatened to kill me in the past. I recently found an ad for a job I KNOW I could do if I could JUST STOP THIS PAIN and get off these awful drugs. BUT-piriformis, piriformis, piriformis!!! I lost hope and was even beginning to believe it would be better if I were DEAD. Now – I have this new information and I will get Dr.John Sarno’s book to read and study. This will either be the miracle I have been crying out for or nothing has changed. I will let you know.

Comment on Piriformis Syndrome. by fleur daly

fleur daly — Fri, 03 Aug 2012 22:17:44 +0000

hello everybody – Been reading the many comments and understand so much of what you are all going through – I have lived like you for nearly 6 years well existed more than lived – people often say ‘my isn’t the year flying by’ not a single day as passed quickly and the nights often endless. Hold onto what you care about and in your lowest hours don’t listen too that inner voice that keeps asking you what good are you now? You can’t work, study, walk, clean, dress …… You are loved and you do matter to many more than you will ever know. and we will get better! And everyone who has written on this page please come back and tell us what has happened since – give us hope. I hope you are all well and so busy running and mountain climbing you don’t have time too be on blogs crying your eyes out – so the admin of this site pop them all an email and ask to pop by and say Hi – take care fleur from Ireland

Comment on Piriformis Syndrome. by DW1111

DW1111 — Fri, 29 Jun 2012 02:19:57 +0000

Nick/Sarah/Melissa,

My strong advice is to read John Sarno’s book on Healing Back Pain. I had severe unrelenting pain consistent with Piriformis syndrome and I was about to have surgery. I read this book which challenged everything I have learned as an MD. However, it worked almost overnight and I got my life back. I have not taken a pain medication since I read the book and implemented the treatment plan. My guess is that it would help you too but at the very least, it is probably worth a try. Hard to do justice to the book in a blog so I will not go into details. Good luck.

Comment on Piriformis Syndrome. by Melissa

Melissa — Sun, 24 Jun 2012 04:37:35 +0000

Thank God I have finally found people who have the same pain I do. I’m 18 years old and I’m a runner. I’ve been dealing with pain in my butt, back, and hamstring for almost 3 years now (which is a long time at my age). I’ve been to
what feels like at least 10 different doctors/physical therapists and I’m not getting much better. I have a huge foam roller, i sit on a tennis ball/ ice pack every time I drive, and I have trouble concentrating in class because the desks cause my butt to feel inflamed. I tried taking 5 months off from running and nothing changed. I really miss running and not having to worry about just simply sitting in a hard chair. The only thing that’s helping me now is I got a prescription for an anti-inflammatory pill. It makes my pain more manageable. This is one of the most difficult things Ive had to deal with and I have a high pain tolerance like most intense long distance runners do. Whenever I feel like I cant take any
more pain, I see someone in a wheelchair and I thank God because I know it could be so much worse. I just wish I had someone who could fully understand my pain, because my parents are getting sick of me complaining… but sometimes I feel like Im not mature enough to handle this by myself!!

Comment on Piriformis Syndrome. by Sarah-Jane Poi-shan Wilmshurst

Sarah-Jane Poi-shan Wilmshurst — Tue, 12 Jun 2012 17:35:45 +0000

I have just found this website today as I have been suffering all the classic pain symptons that describe Piriformus Syndrome and I’m trying to look for a cure but there doesn’t seem to be any :( I’ve had it for 5 weeks and after reading all these stories of people having it for years I am now scared for my future. I was supposed to grade for my Black sash in Kick-boxing last week but couldn’t so thought I could get myself better and do it in September but after reading these blogs that does not look likely either. I went to my doctor who said it was a slipped disc but my Si Fu who is also an osteopath said it’s not a slipped disc but tight piriformus due to a rotated pelvis. I just want to know what I’m dealing with so I can cure it. It hurts when sitting and relieves after walking, first thing in the morning is so painful and getting in the car is excruitating and I’m terrified of sneezing as it feels like I’ve been shot in the butt. I have massage treatments and acupuncture twice a week but it’s not helping. My spine is very cracky as well making all sorts of noises when I click it. Don’t know what to do.

Any feedback welcome,

Sarah

Comment on Piriformis Syndrome. by Nick

Nick — Sun, 10 Jun 2012 22:01:37 +0000

I just found this web site so not sure if anyone is still active with this forum. I have experienced sciatic pain on my left leg for 4 months. Physical therapy and drugs aren’t helping. It only hurts when i walk for 15 minutes, the feet becomes numb and it comes and go. Not sure if i have a disk problem or piriformis. How can i tell? I don’t have back pain. When i sit, i am fine but as soon as i get up and walk, the tingling begins.

Thanks for any feedback.

Nick

Comment on A Pearl’s Necklace, Par Deux…. by George LeChat

George LeChat — Sat, 02 Jun 2012 14:22:58 +0000

Really nice. Particularly the three people in the plastic boat. (Looks like you’re having fun over there.)

Comment on A pearl’s necklace… by olivier

olivier — Tue, 22 May 2012 06:57:22 +0000

Too lazy to response in full but Asia is where it’s at as far as I am concerned…

Comment on Piriformis Syndrome. by DW1111

DW1111 — Sat, 19 May 2012 18:38:49 +0000

Oliver,

Thank you for suggesting reading Dr. John Sarno’s book ‘Healing Back Pain’. As a physician, I was extremely skeptical but in severe, unrelenting pain for 4 months. Within a week of reading the book, contemplating the physiology proposed, and taking the suggested treatment plan, I was cured. It goes against everything I have learned in medicine and if it did not work for me, I would not believe it if a patient were to tell me. I owe you very much and do not even know who you are. I suggest that anyone in chronic pain read this book from cover to cover with an open mind and reflect very carefully on it. It worked for me and I was about to have surgery! Thank you again

Comment on A pearl’s necklace… by Scott Lightner

Scott Lightner — Wed, 16 May 2012 03:25:49 +0000

Hey Olivier, been a long time since I visited your blog. Hope you are enjoying VN. Some of those images look Burmese (women’s headdresses/clothes). Images look nice. After seeing the posting activity, I’m thinking your legacy will be as OP of “Piriformis Syndrome” “;P , that is of course after your brilliant large format series, and Atlas Mag.
(Oh, my…. hard to believe that post is still active). So, not that we know each other well, but what takes you to Asia?

Comment on Piriformis Syndrome. by Darlene

Darlene — Fri, 11 May 2012 21:08:49 +0000

I share the pain! Laser therapy doesn’t work either as I am currently trying it. I believe botox will be next on my list. Five years of pain and many many Drs. Some very rude Drs. at. that. There are a few Drs. listed that claim to do surgery, I’m keeping them in mind after I’ve exhausted all my options. Thanks so much for this site, there seems to be many of us!

Comment on Piriformis Syndrome. by Emily

Emily — Thu, 10 May 2012 18:47:24 +0000

Hi,
I was so sad to hear of all your pain stories but also find comfort that I am not the only one suffering constant pain. My pain began 6 yrs ago in my right leg and gradually spread. It is now in my middle back, right buttock and leg. They think it is the piriformis causing the pain. Like everyone else I have lost count of the things I have tried to lessen the pain. I read one helpful bk called explain pain (butler and Moseley) it helped me understand what pain is about and how staying positive can aid recovery (not easy) I have been to some very dark places over the last 6 yrs, I am currently on anti-depressants and they are helping the mental side. I’ve Come to realise chronic pain doesn’t just take it’s toll on the body, it takes over your mind too. I am trying to stay positive and on the really bad days I am trying to remember my breathing and coping mechanisms (and not spend the entire day crying on the sofa). I am very fortunate to have 2 young children. Although it is so hard being responsible for them when I’m in such pain and I hate not being able to run around with them, they give me something to live for….I had Botox in th piriformis 2,wks ago, at the moment my buttock is more painful and causing a numb /painful right leg but I’m hopeful it will improve. E eryday I think of something I am thankful for, some days i am too fed up to do it but some days I can. My next plan is to attend clinical pilates classes, although I need to practise lying on the floor because t is too painful at the moment. I hoped the pain would be less before I started but …we’ll see. Any way I have ranted enough. I wish you all well.

Comment on Piriformis Syndrome. by Emily

Emily — Thu, 10 May 2012 18:47:23 +0000

Comment on Piriformis Syndrome. by Liz

Liz — Sat, 05 May 2012 07:59:18 +0000

Hello, I have been suffering terribly for 7 years with piriformis syndrome. I was wondering if anyone has seen the website http://www.destroychronicpain.com? Also if it looks credible. I’m willing to try anything!